ash/cherry tree

ash/cherry tree
Our cherry miracle

Thursday, April 29, 2010

Something exciting and something terrifying...all in one week.

Well, finally, it's a reality. As we sat in the chemo room, thinking up tee shirt designs and hoping that we could bring some joy to other patients and their families, we wondered if we would be able to bring the idea to fruition. We looked into the future, and we thought the week it really came into existence would be amazing.

And it has been, but it has also been terrifying, because this week, we learned that Layne is no longer in NED status--he has mets to the liver and two nodes.

We've been told before that his lifespan is limited. And we beat the original prognosis. So we believe it can happen again. We have to believe. We don't have a choice.

Layne has esophageal cancer. It's a rare cancer, not a lot of people have heard of it. Unfortunately, its incidence is growing, especially among men ages 40-50. Layne is 46.

We were told he was stage IVA and therefore, would not get surgery. But after chemo and radiation at MD Anderson, he did indeed get surgery. The surgery seemed to have gone well. The biopsy though, showed perineural invasion--never a good sign for EC.

Our first scans went very well. Layne has been feeling better than he has in twenty years...so we expected great scans this time, as well. How can you be ill when you feel amazing, right?

But our scans on Friday were horrific. Mets...and a bad prognosis. But he still feels great, and we have a great doctor who is willing to fight. And we believe only God numbers our days. So we'll see what God has in store for us on this odd journey.

In the meantime, we got our merchant account approval and our first tee shirt designs arrived, so we are ready to launch. We are excited because we are tired of slogans that keep the attitudes of cancer patients in the negative.

We hope you'll enjoy our designs. We certainly get a lot of comments when we walk through the hospital! And we hope to have quilt blocks, tote bags and hats very soon!

Welcome to ClubNEDwear. You can also follow us on our carepage at www.carepages.com/carepages/ourjourneyinhishands

Let us know how we can pray for you, and visit us at www.ClubNEDwear.com --we should be live any day now!